Barriers to the access and use of health information by individuals with intellectual and developmental disability IDD: A review of the literature

Muneef Alshammari, Owen Doody, Ita Richardson

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

Abstract

Individuals with intellectual and developmental disability remain among the most vulnerable members of society and frequently face numerous barriers to healthcare services. The purpose of this paper is to review the literature exploring health information access and use for those with intellectual and developmental disability (IDD), identifying barriers they face when using systems. A literature search was conducted to identify studies presenting experiences of individuals with IDD when accessing health information. We identified 28 studies which were published between January 2005 and October 2017. Thematic analysis of included articles resulted in identifying six major barriers: (a) communication skill, (b) patient engagement and satisfaction, (c) training/education for clients with IDD, (d) attitude and knowledge of healthcare providers, (e) clients with IDD being excluded from health promotion and research, and (f) quality of accessing healthcare services. The themes presented here provide a starting point in understanding the accessibility of health information for IDD clients. This will facilitate our future research on health interventions for IDD clients through the use of healthcare technology.

Original languageEnglish
Title of host publicationProceedings - 2018 IEEE International Conference on Healthcare Informatics, ICHI 2018
PublisherInstitute of Electrical and Electronics Engineers Inc.
Pages294-298
Number of pages5
ISBN (Electronic)9781538653777
DOIs
Publication statusPublished - 24 Jul 2018
Event6th IEEE International Conference on Healthcare Informatics, ICHI 2018 - New York, United States
Duration: 4 Jun 20187 Jun 2018

Publication series

NameProceedings - 2018 IEEE International Conference on Healthcare Informatics, ICHI 2018

Conference

Conference6th IEEE International Conference on Healthcare Informatics, ICHI 2018
Country/TerritoryUnited States
CityNew York
Period4/06/187/06/18

Keywords

  • Developmental Disability
  • Health Information
  • Health Information Websites
  • Intellectual Disability

Fingerprint

Dive into the research topics of 'Barriers to the access and use of health information by individuals with intellectual and developmental disability IDD: A review of the literature'. Together they form a unique fingerprint.

Cite this