Designing an educational interactive eBook for newly diagnosed children with type 1 diabetes: Mapping a new design space

In this paper, we report on a project investigating the role of Interactive Technologies (IT) and participatory design methods in supporting self-care practices in paediatric Type 1 Diabetes Mellitus (T1DM). In particular, we discuss the design of an educational interactive eBook to support newly diagnosed children and their families in learning about effective management outside the clinical–medical consultation. We use our design as an illustration of a potential new design space for type 1 diabetes learning resources. We map this space by identifying a series of oppositions that helps us to explore new design assumptions that could better support the education of newly diagnosed children and families: learning alone vs learning together, medical vs patient perspective, prescriptive language vs narratives and social stories, and static vs interactive educational contents. Through a discussion of these shifting of points of focus in the design of educational products in T1DM, we hope to open up new opportunities to rethink the design of tools to support the education of paediatric diabetes (and possibly of other chronic diseases and conditions).