TY - JOUR
T1 - Experiences of people living with Parkinson’s disease and key stakeholders in dance-based programs
T2 - a systematic review and meta-ethnography
AU - Senter, Morgan
AU - Clifford, Amanda M.
AU - O’Callaghan, Maureen
AU - McCormack, Megan
AU - Ni Bhriain, Orfhlaith
N1 - Publisher Copyright:
© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2024
Y1 - 2024
N2 - Purpose: To identify and synthesize qualitative literature on the experiences of participants and key stakeholders in dance programs for people living with Parkinson’s disease. Synthesizing the available literature can generate new insights into participant experience to inform current and future programs. Materials and Methods: Qualitative and mixed methods studies were identified via a systematic search of six databases: CINAHL, Web of Science, Scopus, SPORTDiscus, PsycInfo, and MEDLINE. Articles were synthesized using the meta-ethnographic method developed by Noblit and Hare (1988). Key concepts across studies were related via reciprocal translation, ultimately forming a line-of-argument synthesis. Results: 26 articles met the inclusion criteria. Four interrelated, overarching themes were developed: (1) dance communities provide peer support and insight into living with Parkinson’s, (2) feeling safe, accepted, and included in the dance experience, (3) overcoming dance-based challenges contributes to sense of achievement, confidence, and connectedness, and (4) dance participation is an opportunity to re-imagine oneself. Conclusion: Participant experience is shaped by the instructor-participant relationship, the social environment of classes, and class difficulty level. In order to support participant experience, classes should be safe, supportive, and have an appropriate challenge-skill balance. These qualities facilitate creative immersion and the potential for personal and collective change.
AB - Purpose: To identify and synthesize qualitative literature on the experiences of participants and key stakeholders in dance programs for people living with Parkinson’s disease. Synthesizing the available literature can generate new insights into participant experience to inform current and future programs. Materials and Methods: Qualitative and mixed methods studies were identified via a systematic search of six databases: CINAHL, Web of Science, Scopus, SPORTDiscus, PsycInfo, and MEDLINE. Articles were synthesized using the meta-ethnographic method developed by Noblit and Hare (1988). Key concepts across studies were related via reciprocal translation, ultimately forming a line-of-argument synthesis. Results: 26 articles met the inclusion criteria. Four interrelated, overarching themes were developed: (1) dance communities provide peer support and insight into living with Parkinson’s, (2) feeling safe, accepted, and included in the dance experience, (3) overcoming dance-based challenges contributes to sense of achievement, confidence, and connectedness, and (4) dance participation is an opportunity to re-imagine oneself. Conclusion: Participant experience is shaped by the instructor-participant relationship, the social environment of classes, and class difficulty level. In order to support participant experience, classes should be safe, supportive, and have an appropriate challenge-skill balance. These qualities facilitate creative immersion and the potential for personal and collective change.
KW - Dance
KW - meta-ethnography
KW - Parkinson’s disease
KW - qualitative research
KW - systematic review
UR - http://www.scopus.com/inward/record.url?scp=85187119510&partnerID=8YFLogxK
U2 - 10.1080/09638288.2024.2327499
DO - 10.1080/09638288.2024.2327499
M3 - Review article
AN - SCOPUS:85187119510
SN - 0963-8288
VL - 46
SP - 6288
EP - 6301
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 26
ER -