Growing up and moving on - Insights from the health care professionals and adolescents’ perspectives on the issues and barriers in the transfer of care from paediatrics to adult care

Grace Gilmore, Louise Kiernan, Eoin White, Bernard Hartigan

Research output: Contribution to journalConference articlepeer-review

Abstract

The aim of this research is to report the finding from the perspective of the Healthcare Professionals and the adolescents and young adults (AYA's) to identify issues and barriers to a successful transition for adolescents with Juvenile Idiopathic Arthritis (JIA) as they move from Paediatric Healthcare setting to Adult Healthcare. Healthcare services that fail to adequately meet the needs of young people and their families at this time of considerable change may result in a decline in their health status that can have a negative long-term impact. Through a user-centered research design (UCD) and Universal Design, the needs of all participants and stakeholders will be assessed. This paper applies the most appropriate proposed methods for the development of a solution to mitigate against some of the issues in tangent with the needs and feedback identified during the research process.

Original languageEnglish
Pages (from-to)1677-1686
Number of pages10
JournalProceedings of the Design Society
Volume1
DOIs
Publication statusPublished - 2021
Event23rd International Conference on Engineering Design, ICED 2021 - Gothenburg, Sweden
Duration: 16 Aug 202120 Aug 2021

Keywords

  • Design practice
  • Early design phases
  • Juvenile Idiopathic Arthritis(JIA)
  • Transition of care
  • User centred design

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