Abstract

Persons with intellectual and developmental disability (IDD) remain among the most vulnerable members of society and frequently face numerous barriers accessing healthcare services. Following our recent literature review identifying needs for persons with IDD, we propose that frameworks can be useful to identify the key components of person-centred health information. These will ultimately support the building of relevant Health Information Systems. This paper presents the initial development and content of the Person-Centred Health Information framework (PCHI) developed to support persons with mild IDD. PCHI is based on the Information-Motivation-Behavioral skills (IMB) model and its use in the design and development of Health Information Systems has the potential to improve health access and outcomes for persons with mild IDD.

Original languageEnglish
Title of host publicationHEALTHINF 2020 - 13th International Conference on Health Informatics, Proceedings; Part of 13th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2020
EditorsFederico Cabitza, Ana Fred, Hugo Gamboa
PublisherSciTePress
Pages125-132
Number of pages8
ISBN (Electronic)9789897583988
DOIs
Publication statusPublished - 2020
Event13th International Conference on Health Informatics, HEALTHINF 2020 - Part of 13th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2020 - Valletta, Malta
Duration: 24 Feb 202026 Feb 2020

Publication series

NameHEALTHINF 2020 - 13th International Conference on Health Informatics, Proceedings; Part of 13th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2020

Conference

Conference13th International Conference on Health Informatics, HEALTHINF 2020 - Part of 13th International Joint Conference on Biomedical Engineering Systems and Technologies, BIOSTEC 2020
Country/TerritoryMalta
CityValletta
Period24/02/2026/02/20

Keywords

  • Client engagement
  • Gamification in healthcare
  • Information-Motivation-Behavioral Skills Model (IMB)
  • Intellectual and developmental disability
  • Person-Centred Health Information Framework (PCHI)
  • Person-centred care

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