TY - JOUR
T1 - How governments manage personal assistance schemes in response to the United Nations Convention on the Rights of Persons with Disabilities
T2 - A Scoping Review
AU - Nally, Deirdre
AU - Moore, Sean S.
AU - Gowran, Rosemary Joan
N1 - Publisher Copyright:
©, The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2022
Y1 - 2022
N2 - Governments are obligated to safeguard social inclusion for disabled people through user-led personal assistance (PA) under Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This scoping review was carried out to map and explore current knowledge on how governments internationally have managed PA schemes in response to the UNCRPD. The review examined 99 documents, and categorised the literature into the following themes; legislation, funding, model of service provision, governance and regulation, and the COVID-19 pandemic response. We include recommendations to co-design legislation and quality improvement policies to ensure that PA schemes are underpinned by a social model of disability mindset. Further research needs to be undertaken to guarantee that policymakers include the voice of PA users in the management of PA schemes. Points of interest This article looked at 99 documents to find out how governments are managing personal assistance (PA). It found out that governments can often decide to spend less money on a PA scheme rather than protect our rights. To overcome this problem the documents recommended that legislation for PA schemes must be designed with disabled people. Governments must redirect their money from institutional services to community-based services. Eligibility criteria to control access and the costs of PA should be removed. This paper suggests that we need to have the voice of the PA user to direct the design and delivery of PA schemes. Supplemental data for this article is available online at https://doi.org/10.1080/09687599.2021.1877114.
AB - Governments are obligated to safeguard social inclusion for disabled people through user-led personal assistance (PA) under Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This scoping review was carried out to map and explore current knowledge on how governments internationally have managed PA schemes in response to the UNCRPD. The review examined 99 documents, and categorised the literature into the following themes; legislation, funding, model of service provision, governance and regulation, and the COVID-19 pandemic response. We include recommendations to co-design legislation and quality improvement policies to ensure that PA schemes are underpinned by a social model of disability mindset. Further research needs to be undertaken to guarantee that policymakers include the voice of PA users in the management of PA schemes. Points of interest This article looked at 99 documents to find out how governments are managing personal assistance (PA). It found out that governments can often decide to spend less money on a PA scheme rather than protect our rights. To overcome this problem the documents recommended that legislation for PA schemes must be designed with disabled people. Governments must redirect their money from institutional services to community-based services. Eligibility criteria to control access and the costs of PA should be removed. This paper suggests that we need to have the voice of the PA user to direct the design and delivery of PA schemes. Supplemental data for this article is available online at https://doi.org/10.1080/09687599.2021.1877114.
KW - disability policy
KW - independent living
KW - Personal assistance
KW - scoping review
KW - UN Convention on the Rights of Persons with Disabilities
UR - http://www.scopus.com/inward/record.url?scp=85104061814&partnerID=8YFLogxK
U2 - 10.1080/09687599.2021.1877114
DO - 10.1080/09687599.2021.1877114
M3 - Article
AN - SCOPUS:85104061814
SN - 0968-7599
VL - 37
SP - 1728
EP - 1751
JO - Disability and Society
JF - Disability and Society
IS - 10
ER -