Measuring staff perception of end-of-life experience of older adults in long-term care

Nicola Cornally; Alice Coffey; Edel Daly; Ciara McGlade; Elizabeth Weathers; Eileen O'Herlihy; Rónán O'Caoimh; Kathleen McLoughlin; Anton Svendrovski; William Molloy

doi:10.1016/j.apnr.2015.05.015

Measuring staff perception of end-of-life experience of older adults in long-term care

Nicola Cornally, Alice Coffey, Edel Daly, Ciara McGlade, Elizabeth Weathers, Eileen O'Herlihy, Rónán O'Caoimh, Kathleen McLoughlin, Anton Svendrovski, William Molloy

Research output: Contribution to journal › Article › peer-review

Abstract

Background: Quality of dying and death receive far less attention than quality of life. Measuring the quality of care at end-of-life (EOL) in long-term care (LTC) is essential, to ensure high standards. Methods: A questionnaire measuring staff perception of their patient's end of life experience (SPELE) was developed. Content validity (CVI) was assessed by a panel of experts, and piloting was conducted with dyads of healthcare assistants (n = 15) and nurses (n = 15). Results: The SPELE captures facets of the quality of the death and dying experience from healthcare staff's perspective. Good group inter-rater reliability was observed among subscales. One exception was the pain and symptom experience scale. Kappa values showed little agreement between nurses and healthcare assistants for certain symptoms, including pain. Conclusion: Further testing of the questionnaire is required. However it is described as a useful mechanism to enable researchers and clinicians to explore quality of care at EOL.

Original language	English
Pages (from-to)	245-251
Number of pages	7
Journal	Applied Nursing Research
Volume	30
DOIs	https://doi.org/10.1016/j.apnr.2015.05.015
Publication status	Published - 1 May 2016
Externally published	Yes

Keywords

Dying and death
End of life
Long-term care
Older adults
Quality of care
Questionnaire design

Access to Document

10.1016/j.apnr.2015.05.015

Cite this

@article{1ba7b437f0e14773a9f9d36722953580,

title = "Measuring staff perception of end-of-life experience of older adults in long-term care",

abstract = "Background: Quality of dying and death receive far less attention than quality of life. Measuring the quality of care at end-of-life (EOL) in long-term care (LTC) is essential, to ensure high standards. Methods: A questionnaire measuring staff perception of their patient's end of life experience (SPELE) was developed. Content validity (CVI) was assessed by a panel of experts, and piloting was conducted with dyads of healthcare assistants (n = 15) and nurses (n = 15). Results: The SPELE captures facets of the quality of the death and dying experience from healthcare staff's perspective. Good group inter-rater reliability was observed among subscales. One exception was the pain and symptom experience scale. Kappa values showed little agreement between nurses and healthcare assistants for certain symptoms, including pain. Conclusion: Further testing of the questionnaire is required. However it is described as a useful mechanism to enable researchers and clinicians to explore quality of care at EOL.",

keywords = "Dying and death, End of life, Long-term care, Older adults, Quality of care, Questionnaire design",

author = "Nicola Cornally and Alice Coffey and Edel Daly and Ciara McGlade and Elizabeth Weathers and Eileen O'Herlihy and R{\'o}n{\'a}n O'Caoimh and Kathleen McLoughlin and Anton Svendrovski and William Molloy",

note = "Publisher Copyright: {\textcopyright} 2015 Elsevier Inc.",

year = "2016",

month = may,

day = "1",

doi = "10.1016/j.apnr.2015.05.015",

language = "English",

volume = "30",

pages = "245--251",

journal = "Applied Nursing Research",

issn = "0897-1897",

}

TY - JOUR

T1 - Measuring staff perception of end-of-life experience of older adults in long-term care

AU - Cornally, Nicola

AU - Coffey, Alice

AU - Daly, Edel

AU - McGlade, Ciara

AU - Weathers, Elizabeth

AU - O'Herlihy, Eileen

AU - O'Caoimh, Rónán

AU - McLoughlin, Kathleen

AU - Svendrovski, Anton

AU - Molloy, William

PY - 2016/5/1

Y1 - 2016/5/1

N2 - Background: Quality of dying and death receive far less attention than quality of life. Measuring the quality of care at end-of-life (EOL) in long-term care (LTC) is essential, to ensure high standards. Methods: A questionnaire measuring staff perception of their patient's end of life experience (SPELE) was developed. Content validity (CVI) was assessed by a panel of experts, and piloting was conducted with dyads of healthcare assistants (n = 15) and nurses (n = 15). Results: The SPELE captures facets of the quality of the death and dying experience from healthcare staff's perspective. Good group inter-rater reliability was observed among subscales. One exception was the pain and symptom experience scale. Kappa values showed little agreement between nurses and healthcare assistants for certain symptoms, including pain. Conclusion: Further testing of the questionnaire is required. However it is described as a useful mechanism to enable researchers and clinicians to explore quality of care at EOL.

AB - Background: Quality of dying and death receive far less attention than quality of life. Measuring the quality of care at end-of-life (EOL) in long-term care (LTC) is essential, to ensure high standards. Methods: A questionnaire measuring staff perception of their patient's end of life experience (SPELE) was developed. Content validity (CVI) was assessed by a panel of experts, and piloting was conducted with dyads of healthcare assistants (n = 15) and nurses (n = 15). Results: The SPELE captures facets of the quality of the death and dying experience from healthcare staff's perspective. Good group inter-rater reliability was observed among subscales. One exception was the pain and symptom experience scale. Kappa values showed little agreement between nurses and healthcare assistants for certain symptoms, including pain. Conclusion: Further testing of the questionnaire is required. However it is described as a useful mechanism to enable researchers and clinicians to explore quality of care at EOL.

KW - Dying and death

KW - End of life

KW - Long-term care

KW - Older adults

KW - Quality of care

KW - Questionnaire design

UR - http://www.scopus.com/inward/record.url?scp=84960959242&partnerID=8YFLogxK

U2 - 10.1016/j.apnr.2015.05.015

DO - 10.1016/j.apnr.2015.05.015

M3 - Article

C2 - 27091285

AN - SCOPUS:84960959242

SN - 0897-1897

VL - 30

SP - 245

EP - 251

JO - Applied Nursing Research

JF - Applied Nursing Research

ER -

Measuring staff perception of end-of-life experience of older adults in long-term care

Abstract

Keywords

Access to Document

Other files and links

Fingerprint

Cite this