TY - JOUR
T1 - Normalising participatory health research approaches in the WHO European region for refugee and migrant health
T2 - a paradigm shift
AU - MacFarlane, Anne
AU - Huschke, Susann
AU - Marques, Maria J.
AU - Gama, Ana
AU - Kinaan, Walaa
AU - Hassan, Ahmed
AU - Papyan, Anna
AU - Phelan, Helen
AU - Severoni, Santino
AU - Kumar, Bernadette
AU - Dias, Sonia
N1 - Publisher Copyright:
© 2024
PY - 2024/6
Y1 - 2024/6
N2 - While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt ‘business as usual’, we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.
AB - While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt ‘business as usual’, we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.
KW - Community participation
KW - Health equity
KW - Migration
KW - Participatory health research
KW - Public health
UR - http://www.scopus.com/inward/record.url?scp=85195638986&partnerID=8YFLogxK
U2 - 10.1016/j.lanepe.2024.100837
DO - 10.1016/j.lanepe.2024.100837
M3 - Review article
AN - SCOPUS:85195638986
SN - 2666-7762
VL - 41
JO - The Lancet Regional Health - Europe
JF - The Lancet Regional Health - Europe
M1 - 100837
ER -