TY - JOUR
T1 - Pilot study of participating in a fatigue management programme for clients with multiple sclerosis
AU - Twomey, Frances
AU - Robinson, Katie
PY - 2010
Y1 - 2010
N2 - Purpose. The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS). Method. Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective. Results. Participants experienced ownership, active participation and empowerment. Participants' fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports. Conclusion. Participants' experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.
AB - Purpose. The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS). Method. Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective. Results. Participants experienced ownership, active participation and empowerment. Participants' fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports. Conclusion. Participants' experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.
KW - Fatigue
KW - Multiple sclerosis
KW - Occupational therapy
UR - http://www.scopus.com/inward/record.url?scp=77953253385&partnerID=8YFLogxK
U2 - 10.3109/09638281003656578
DO - 10.3109/09638281003656578
M3 - Article
C2 - 20175673
AN - SCOPUS:77953253385
SN - 0963-8288
VL - 32
SP - 791
EP - 800
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 10
ER -