TY - GEN
T1 - Preferences of residents with dementia for end of life care
AU - Mulqueen, Kiri
AU - Coffey, Alice
N1 - Publisher Copyright:
© 2017 RCNi Ltd. All rights reserved.
PY - 2017
Y1 - 2017
N2 - Aim To explore the preferences of residents with dementia for their end of life care, and nurses' perceptions of these preferences. Method Residents' preferences were compared with nurses' perceptions of their preferences in a qualitatively designed study in which the nominal group technique was adopted for data collection. Findings Some of the residents' preferences for their end of life care matched nurses' perceptions of their preferences, but differences were identified. Residents emphasised comfort, family presence, familiar staff and surroundings; nurses thought that residents would want good communication, pain management, advance care planning, being cared for by knowledgeable staff and the inclusion of their families. Conclusion End of life care needs are individual and a generic approach is not a sufficient standard of care for people with dementia. Patients should be included in studies about their needs and preferences for future care to provide a holistic approach to end of life care, and to develop evidence-based standards.
AB - Aim To explore the preferences of residents with dementia for their end of life care, and nurses' perceptions of these preferences. Method Residents' preferences were compared with nurses' perceptions of their preferences in a qualitatively designed study in which the nominal group technique was adopted for data collection. Findings Some of the residents' preferences for their end of life care matched nurses' perceptions of their preferences, but differences were identified. Residents emphasised comfort, family presence, familiar staff and surroundings; nurses thought that residents would want good communication, pain management, advance care planning, being cared for by knowledgeable staff and the inclusion of their families. Conclusion End of life care needs are individual and a generic approach is not a sufficient standard of care for people with dementia. Patients should be included in studies about their needs and preferences for future care to provide a holistic approach to end of life care, and to develop evidence-based standards.
KW - Dementia
KW - End of life care
KW - Long-term care
KW - Nominal group technique
KW - Resident nursing
UR - http://www.scopus.com/inward/record.url?scp=85014076023&partnerID=8YFLogxK
U2 - 10.7748/nop.2017.e862
DO - 10.7748/nop.2017.e862
M3 - Article
C2 - 28244346
AN - SCOPUS:85014076023
SN - 1472-0795
VL - 29
SP - 26
EP - 30
JO - Nursing Older People
JF - Nursing Older People
ER -