Abstract
Intellectual disability services recognise people with intellectual disability as a family member and aim to provide effective support that facilitates family cohesion. However, the needs of families and individuals within the family should be addressed in a holistic manner to ensure a seamless service. This article outlines a mother's reflections on her experience of raising a child with autism spectrum disorder and its impact on her life. The article focuses on one mother's feelings, coping or lack of coping and growth during a time of sadness. This article written by a mother, nurse and academic through their shared interest in supporting families of children with a disability all came together to tell this story. It is hoped that this article will assist professionals understand a mother's perspective when raising a child with intellectual disability and support professionals to recognise the importance of listening, coordinated support and working in partnership.
| Original language | English |
|---|---|
| Pages (from-to) | 376-386 |
| Number of pages | 11 |
| Journal | Journal of Intellectual Disabilities |
| Volume | 17 |
| Issue number | 4 |
| DOIs | |
| Publication status | Published - Dec 2013 |
Keywords
- Autism spectrum disorder
- Coping
- Families
- Listening
- Mother