TY - JOUR
T1 - Searching for the Impact of Participation in Health and Health Research
T2 - Challenges and Methods
AU - Harris, Janet
AU - Cook, Tina
AU - Gibbs, Lisa
AU - Oetzel, John
AU - Salsberg, Jon
AU - Shinn, Carolynne
AU - Springett, Jane
AU - Wallerstein, Nina
AU - Wright, Michael
N1 - Publisher Copyright:
© 2018 Janet Harris et al.
PY - 2018
Y1 - 2018
N2 - Internationally, the interest in involving patients and the public in designing and delivering health interventions and researching their effectiveness is increasing. Several systematic reviews of participation in health research have recently been completed, which note a number of challenges in documenting the impact of participation. Challenges include working across stakeholders with different understandings of participation and levels of experience in reviewing; comparing heterogeneous populations and contexts; configuring findings from often thin descriptions of participation in academic papers; and dealing with different definitions of impact. This paper aims to advance methods for systematically reviewing the impact of participation in health research, drawing on recent systematic review guidance. Practical examples for dealing with issues at each stage of a review are provided based on recent experience. Recommendations for improving primary research on participation in health are offered and key points to consider during the review are summarised.
AB - Internationally, the interest in involving patients and the public in designing and delivering health interventions and researching their effectiveness is increasing. Several systematic reviews of participation in health research have recently been completed, which note a number of challenges in documenting the impact of participation. Challenges include working across stakeholders with different understandings of participation and levels of experience in reviewing; comparing heterogeneous populations and contexts; configuring findings from often thin descriptions of participation in academic papers; and dealing with different definitions of impact. This paper aims to advance methods for systematically reviewing the impact of participation in health research, drawing on recent systematic review guidance. Practical examples for dealing with issues at each stage of a review are provided based on recent experience. Recommendations for improving primary research on participation in health are offered and key points to consider during the review are summarised.
UR - http://www.scopus.com/inward/record.url?scp=85047859200&partnerID=8YFLogxK
U2 - 10.1155/2018/9427452
DO - 10.1155/2018/9427452
M3 - Article
C2 - 29862298
AN - SCOPUS:85047859200
SN - 2314-6133
VL - 2018
SP - -
JO - BioMed Research International
JF - BioMed Research International
M1 - 9427452
ER -