The impact of spinal cord injury on the quality of life of primary family caregivers: a literature review: A literature review

Roisin Cahalan, J. Lynch

Research output: Contribution to journalArticlepeer-review

Abstract

Study design:Literature review.Objectives:To provide a detailed review of the literature regarding the impact of spinal cord injury (SCI) on the quality of life (QOL) of family members who have become the primary caregiver and to highlight potential interventions available.Methods:Appropriate databases were searched for relevant peer-reviewed studies. Twenty-five studies (four qualitative and 21 quantitative) were identified which investigated the role that family members play in caring for people with SCI and the impact it has on their QOL.Results:Depression, anxiety, physical symptoms and reduced satisfaction with life in primary family caregivers of patients with SCI were commonly reported across the literature. Isolation, loss of identity and role changes were also regularly reported as negative outcomes of caregiving for someone with an SCI. A range of interventions (including family training, problem-solving training and support groups) have been shown to have benefits for family caregivers' QOL.Conclusion:SCI impacts significantly on the QOL of family caregivers, with major implications for physical, mental and social aspects of caregiver health. This review highlights that these important issues are problematic internationally and may persist over several decades. The need for focused interventions to support family caregivers of spinal cord injured persons, with particular emphasis on increasing patient/family education and access to support groups, is recommended.

Original languageEnglish (Ireland)
Pages (from-to)964-978
Number of pages15
JournalSpinal Cord
Volume55
Issue number11
DOIs
Publication statusPublished - 1 Nov 2017

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