The patient's voice: What are the views of women on living with pelvic floor problems following successful treatment for pelvic cancers?

BACKGROUND: Pelvic cancers in women are often treated using surgery and radiotherapy alone or in combination. There is evidence that this may result in pelvic floor dysfunctions (PFDs). PURPOSE: This qualitative study aimed to explore the impact of pelvic floor dysfunctions on cancer survivors. METHODS: Survivors of gynaecology or colorectal cancers were invited to participate in this study if they were: more than one year post treatment completion; in remission; and symptomatic of PFD. Semi-stuctured interviews were conducted (n = 12), with questions posed around the impact of PFD symptoms. Interviews were transcribed verbatim and analysed using thematic analysis. RESULTS: All participants reported lifestyle compromises around planning and control activities. However, this was underpinned by a determination not to allow PFD to abolish social interactions. The degree of acceptance varied: in some cases there was a high level of tolerance and resignation to symptoms. However, there was also intolerance of PFD symptoms, especially bowel control and sexual dysfunction, sometimes expressed by the same individual. Women frequently referred to emotions caused by PFD: frustration, worry, lack of confidence, embarrassment. Some noted effects of their symptoms on intimate and other relationships. Communication with health professionals about PFD was inconsistent. CONCLUSIONS: Symptoms of PFD following successful pelvic cancer treatment can limit female survivors fully engaging in normal life. Alteration in lifestyle activities can accommodate symptoms, but there is consequent emotional impact, and effect on friends and family. There is a reluctance exists to allow symptoms to prevent social interactions altogether.