TY - JOUR
T1 - The public and patient involvement imperative in Ireland
T2 - Building on policy drivers
AU - Gilfoyle, Meghan
AU - MacFarlane, Anne
AU - Hannigan, Ailish
AU - Niranjan, Vikram
AU - Hughes, Zoe
AU - Salsberg, Jon
N1 - Publisher Copyright:
Copyright © 2022 Gilfoyle, MacFarlane, Hannigan, Niranjan, Hughes and Salsberg.
PY - 2022/11/10
Y1 - 2022/11/10
N2 - What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary. In this paper, we draw on global traditions to explore dominant themes and key considerations and critiques pertaining to PPI in order to inform a PPI culture shift in Ireland. We then describe the heritage of PPI in Ireland and present the case for combining methodological imperatives with policy drivers to support and encourage meaningful involvement. Specifically, we propose that PPI can be enriched by the theory and processes of participatory health research (PHR); and that implementation requires concurrent capacity building. We conclude with a call for Irish researchers (authors of this paper included) to consider the conceptual complexities and nuances of a participatory approach to build on the policy imperatives driving PPI and to contribute to the international evidence base and research culture. Specifically, we call for Irish health researchers and funders to consider and reflect on: (1) the rich literature of PHR as a resource for enacting meaningful PPI; (2) the roots and origins of varying participatory health research methods; (3) how community/patient groups can lead health research; and (4) co-learning and partnership synergy to create space for both academic and community expertise; and (5) the importance of using standardized reporting tools.
AB - What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary. In this paper, we draw on global traditions to explore dominant themes and key considerations and critiques pertaining to PPI in order to inform a PPI culture shift in Ireland. We then describe the heritage of PPI in Ireland and present the case for combining methodological imperatives with policy drivers to support and encourage meaningful involvement. Specifically, we propose that PPI can be enriched by the theory and processes of participatory health research (PHR); and that implementation requires concurrent capacity building. We conclude with a call for Irish researchers (authors of this paper included) to consider the conceptual complexities and nuances of a participatory approach to build on the policy imperatives driving PPI and to contribute to the international evidence base and research culture. Specifically, we call for Irish health researchers and funders to consider and reflect on: (1) the rich literature of PHR as a resource for enacting meaningful PPI; (2) the roots and origins of varying participatory health research methods; (3) how community/patient groups can lead health research; and (4) co-learning and partnership synergy to create space for both academic and community expertise; and (5) the importance of using standardized reporting tools.
KW - co-design
KW - community-based participatory research (CBPR)
KW - health service research
KW - meaningful involvement
KW - methodological
KW - participatory health research
KW - policy
KW - public and patient involvement (PPI)
UR - http://www.scopus.com/inward/record.url?scp=85142676067&partnerID=8YFLogxK
U2 - 10.3389/fpubh.2022.1038409
DO - 10.3389/fpubh.2022.1038409
M3 - Article
C2 - 36438293
AN - SCOPUS:85142676067
SN - 2296-2565
VL - 10
JO - Frontiers in Public Health
JF - Frontiers in Public Health
M1 - 1038409
ER -